Patient Advisory Committee (PAC)
The OBRI PAC is a volunteer-led committee comprised of patient representatives. Its role is to represent and communicate patient perspectives to OBRI staff, investigators and stakeholders; and to motivate and engage patients through education, knowledge transfer, and ongoing communication. Past accomplishments include:
- The production of an annual patient newsletter to inform patients about OBRI research, news and events
- The development of plain-language summaries to communicate research findings to patients
- The compilation of information on medications to facilitate patient awareness of RA treatment options
- The co-facilitation of OBRI patient sessions to communicate OBRI research activities and identify patient research priorities
- The creation of terms of reference and guiding principles documents.
OBRI Patient Advisory Committee Members (October 2019)
- Catherine Hofstetter, Chair (Canadian Arthritis Network, Canadian Arthritis Patient Network)
- David Barker (Caregiver Representative)
- Jennifer Boyle (Patient Partners in Arthritis; The Arthritis Society)
- Maureen Forbes (Patient Representative)
- Lynda Linderman (OBRI Interviewer)
- Gerald Major (Canadian Spondylitis Association)
- Erinn McQueen (Patient Partners in Arthritis)
- Denis Morrice (Ontario Rheumatology Association)